tag:blogger.com,1999:blog-3287942833314297300.post6902744022777943327..comments2024-03-21T12:57:45.093-05:00Comments on The Squeaky Wheelchair: The American Dream Also Has Wheels: Reforming Medicaid to Give People with Disabilities Equal OpportunityThe Squeaky Wheelchairhttp://www.blogger.com/profile/06173011955812450261noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3287942833314297300.post-13154798528568413702014-11-18T18:10:08.437-06:002014-11-18T18:10:08.437-06:00Kathleen this is extremely interesting. I think yo...Kathleen this is extremely interesting. I think you may have left out the issue of if someone gives you a gift. If you get a gift you technically have to report it and they will take the price of the gift out of your account. If you get a monetary gift say a check in your name then you have to report the gift and they take it out of you're $2000 a month. If you get money from your parents because you need to buy books and you don't have enough money in your account if your parents help you out you are supposed to pay the government the amount your parents gave you. Its all very confusing to me but it happened to me. Also if you are in the hospital the government stops paying you the 700 or 500 and something dollars that you would normally receive. They don't think about the cost of living at all. If you are in a hospital and are lucky enough to live in an apartment, say good bye to it because you won't be able to pay the necessities because you have no money coming in. I don't know all he technical terms I just know what the SSI office told me after they dropped me when I have the use of one arm and have to lay on my back to drive. Now I am even worse and instead of reinstating me they went back to where they screwed up and are slowly giving money back from then and giving my regular checks too. The most annoying part is I was not told I was back on disability. I went to call them and my dad hapend to look at my bank account and noticed I was in fact getting paid again.Anonymoushttps://www.blogger.com/profile/11768262190618600541noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-11571111298724893482014-07-21T09:31:42.942-05:002014-07-21T09:31:42.942-05:00Thank you!!! I appreciate you taking the time to r...Thank you!!! I appreciate you taking the time to read & spread the word.The Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-43191327326414255442014-06-27T08:55:29.872-05:002014-06-27T08:55:29.872-05:00Kathleen, I am the caregiver of multiple disabled ...Kathleen, I am the caregiver of multiple disabled family members. Thank you for your post! It is frustrating and frightening to me as I watch everything the older members of my horde have to go through, and realize that the children will also be affected and held back by these same ridiculous rules and restrictions. Having an ABLE account would take the largest issues away and allow the children the possibility of someday being in command of their own lives as adults. I will be looking into this and giving it whatever meager support I can! Candes Kinghttps://www.blogger.com/profile/12872282140758376502noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-61085356462364902422014-05-05T15:13:29.292-05:002014-05-05T15:13:29.292-05:00Hi Anais!
It took me a while to figure out how to ...Hi Anais!<br />It took me a while to figure out how to reply on here! Thanks for writing! I am so sorry to hear all the been through but stories like yours motivate me to keep going and keep fighting until we make a change. If you haven't already, please please join me in contacting your Congress people and educating other people about this issue. I'm trying to build a network of people who can work together with me. If you'd like to keep in contact, use the contact form by the side of my page and we can exchange emails. In solidarity, Kathleen at the squeaky wheelchairThe Squeaky Wheelchairhttps://www.blogger.com/profile/06173011955812450261noreply@blogger.comtag:blogger.com,1999:blog-3287942833314297300.post-51495047042503580432014-05-05T11:25:04.901-05:002014-05-05T11:25:04.901-05:00Wow, I had NO idea that they were working on a bil...Wow, I had NO idea that they were working on a bill like this. I acquired a disability 3 years ago due to an accident, and when I got approved for social security, and sent my backpayment, I wanted to put it aside for a down payment on a house, or to move to a more accessible place that was going to take awhile to locate. I was told by social security that I had something like a month to spend the money, because I wasn't allowed to have more than $2000 in my bank account, or my social security would be taken away. I was really heartbroken, because living on disability and having kids to care for, how the heck would I ever have a chance to have that kind of money ever again? Now I struggle to get by every month (my foodstamps were cut down to almost nothing because I "made too much money" on social security), and the last two weeks of every month is spent trying to be creative about cooking, and obtaining as many food boxes as possible. I DESPERATELY need dental work, due to problems I had when recovering from my first surgery, I've broken a bunch of teeth. Even with insurance I got through medicare that helps pay dental (80% of $1250 a year), I have NO way to come up with the other 20%, that has to be paid day of the appointment, even though I don't have a CLUE how much it is going to cost going in (and they refused to give me any price range, either). It's very discouraging. And then, with places like Goodwill claiming they help find disabled people jobs, and now it's come out that they pay people sometimes LESS than $2.00 an hour, that's also discouraging. Oops, sorry, I wrote you a book.Anonymoushttps://www.blogger.com/profile/10987517229345713739noreply@blogger.com